My name is Runi and I was diagnosed November 16, 2005 just a few weeks shy of my 29th birthday. I was repeatedly told that I was too young and too healthy to have breast cancer. Cancer is not prejudice to anyone regardless of age, race or socioeconomic. This is my story and I hope people learn a great deal from it. Feel free to contact me if you have questions or want to simply talk.
Tuesday, April 21, 2009
GRAPHIC III 2009
Music this year was provided by Patricia Vonne.
Our emcees Kinky Friedman and Crestina Chavez. Crestina is an anchor woman with News 8 and our new board member. Her mother passed away from breast cancer.
My Cowgirls gearing up for the runway. Phew! What a long but successful night! You're looking at tired Cowgirls! Graphic III is about strength, beauty and survivorship.
Thursday, April 9, 2009
Notes from the 9th Annual Conference of Young Women Affected by Breast Cancer
Sorry for the delay but here's my notes from the conference in Dallas.
9th Annual Conference for Young Women
Affected by Breast Cancer 2009
Medical Update
- Tamoxifen is the standard for 5 years for those premenopausal.
- ER + Tamoxifen & oophorectomy, AI should not be a standard treatment for premenopausal
- Triple negative with high recurrence after dx but once reach 5 years may possibly be cured
Bone Health
- Causes of breast cancer and bone loss: steroids, chemo, lower estrogen, AI
- Tamoxifen for premenstrual can decrease bone density by 1.4 % a year
- AI can decrease by 2.6% a year.
- Suggestions: premenstrual take 1200 mg of Ca and post 1500 mg throughout the day and on an empty stomach; foods/drinks high in Ca includes milk, yogurt, fortified food, cheese; vitamin D3 1000 IU; weight bearing exercise 30 minutes three to four times a day; bisphosphonates can help improve bone lost
- Premenopausal women should check the z score and post the T score
Navigating Health Insurance
- Individual policies are not subject to HIPAA, regulated by state, must claim pre-existing, can ask for a list of those that guarantee coverage and does NOT look at pre-existing
- Medicare donut hole plan D gap coverage closes donut hole; get gap coverage if need lots of meds; $4600 for prescription once met patient pays 5% of full cost; www.needymeds.com may help
- Pre-existing better to be off of HMO because it’s very restrictive
- Patient Advocate Foundation www.patientadvocate.org or Co-Pay Relief www.copays.org
Sexuality Renewal after Breast Cancer
- Most common sexual problems after breast cancer is lack of desire/pleasure, pain, dryness, and discomfort during sex
- Predictors for low desire after breast cancer is being younger at dx, chemotherapy, relationship conflict and general life stress
- Techniques to enhance desire by identify and promote activities that increase sexual desire: physical sports or dance, intimate talks, cuddling, romance, erotic stories, videos, fantasies, make sure partner knows how to please you, get counseling, change meds that could be interfering, treat any sexual pain or vaginal dryness
- Communication tips: create a safe space and time to talk, choose one or two goals for change, focus on specific, positive requests, avoid conflict about the past, discuss fears of rejection, discuss fears about survival and QOL, be a good listener too
Advanced Breast Cancer: Living with Uncertainty
- Coping activities: making short and long range goals, locate and access resources, identify strengths and weaknesses, remember you always have a choice
- Have a team. List those on your team.
- Live by staying in the moment, focus on priorities and do what you can when you can
- Use self care strategies like journal writing, relaxation, hobbies, reframe challenges and humor
Monday, April 6, 2009
Young Adult Cancer Awareness Week
National Young Adult Cancer Awareness Week
Young adults with cancer face unique concerns. Help raise awareness about this age group’s particular needs from April 5–11.